Kat's Page (Micah's Momma)
April 23, 2013 changed our lives forever. I got a call from our daycare lady that no Mom wants to hear, something was wrong with Micah. When I arrived he was unresponsive and the ambulance was on his way. That day we took a ride with lights and sirens on and were greeted by a team of medical professionals when we arrived at the hospital. We went through a slew of medical tests: spinal tap, MRI, CT scan and blood work. We were told it was a fever seizure, that he would be fine and would be discharged.
The hospital told us he was cold but okay when they discharged us; we knew better, he was still seizing. We drove him to a second hospital and they finally gave him meds that stopped the seizures. Temporily at least. The next few weeks were full of tests, ambulance rides and hospital stays. Micah was diagnose with Epilepsy and we even went through the genetic testing to rule out Dravet Syndrome.
Micah went to therapy 3x a week to regain skills he lost from his seizures. We now have a medicine that controls his seizures without terrible side effects.
We are grateful. We are grateful for our family, our friends and our faith which have all helped us on this journey. Some days have been better than others. Some days Micah still has seizures. But we walk. We walk for awareness and education. We walk because we will always fight. We will always make sure he knows he is more than his diagnosis. He is our superhero!
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